{"id":4145,"date":"2024-07-16T14:34:51","date_gmt":"2024-07-16T12:34:51","guid":{"rendered":"https:\/\/get.med.tum.de\/?p=4145"},"modified":"2024-07-16T15:52:12","modified_gmt":"2024-07-16T13:52:12","slug":"new-publication","status":"publish","type":"post","link":"https:\/\/get.med.tum.de\/en\/new-publication\/","title":{"rendered":"Competing interests: digital health and indigenous data sovereignty"},"content":{"rendered":"<div class=\"wpb-content-wrapper\"><div class=\"vc_row wpb_row row bg_default\"><div class=\"wpb_column vc_column_container col-sm-12 col-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_row dhsv_vc_header\" data-vc-full-width=\"true\">\n  <div class=\"dhsv_vc_header__bg\">\n    <div class=\"dhsv_vc_header__clip-path\">\n      <div class=\"dhsv_vc_header__image\" style=\"background-image: url(https:\/\/get.med.tum.de\/wp-content\/uploads\/2024\/07\/education-3648386_1280-1024x681.jpg)\"><\/div>\n      <div class=\"dhsv_vc_header__overlay\" style=\"background-image: url(https:\/\/get.med.tum.de\/wp-content\/themes\/360vier-theme\/resources\/assets\/images\/header-gradient.png)\"><\/div>\n    <\/div>\n  <\/div>\n  <div class=\"dhsv_vc_header__wrap\">\n          <h2 class=\"dhsv_vc_header__headline\">Competing interests: digital health and indigenous data sovereignty<\/h2>\n              <p class=\"dhsv_vc_header__subheadline\">New article by Stuart McLennan, Marieke Bak, Amelia Fiske et al.<\/p>\n      <\/div>\n<\/div>\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<p><span style=\"color: #808080;\">July 16, 2024<\/span><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row row bg_default\"><div class=\"wpb_column vc_column_container col-sm-12 col-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_empty_space\"   style=\"height: 50px\"><span class=\"vc_empty_space_inner\"><\/span><\/div><\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row row bg_default\"><div class=\"wpb_column vc_column_container col-sm-12 col-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\">\n\t<div class=\"wpb_text_column wpb_content_element\" >\n\t\t<div class=\"wpb_wrapper\">\n\t\t\t<p>Digital health is increasingly promoting open health data. Although this open approach promises a number of benefits, it also leads to tensions with Indigenous data sovereignty movements led by Indigenous peoples around the world who are asserting control over the use of health data as a part of self-determination. Digital health has a role in improving access to services and delivering improved health outcomes for Indigenous communities.<\/p>\n<p>There are ~476 million Indigenous people around the world, belonging to Indigenous communities spread across &gt;90 countries with different languages, worldviews, relations to land, preferred terminology and most relevant: determinants of health<sup><a id=\"ref-link-section-d79950802e589\" title=\"United Nations. We Need Indigenous Communities For a Better World. https:\/\/www.un.org\/en\/observances\/indigenous-day\/background (2023).\" href=\"https:\/\/www.nature.com\/articles\/s41746-024-01171-z#ref-CR1\" data-track=\"click\" data-track-action=\"reference anchor\" data-track-label=\"link\" data-test=\"citation-ref\" aria-label=\"Reference 1\">1<\/a><\/sup>. Many Indigenous groups share a commonality of inclusion under the United Nations Declaration of Rights of Indigenous people, but even within national contexts Indigenous peoples are far from a cultural or political monolith, with 574 different Indigenous Nations represented within the United States alone<sup><a id=\"ref-link-section-d79950802e593\" title=\"US Gov. Federally Recognized Indian Tribes and Resources for Native Americans. https:\/\/www.usa.gov\/tribes#:~:text=The%20U.S.%20government%20officially%20recognizes,contracts%2C%20grants%2C%20or%20compacts (2023).\" href=\"https:\/\/www.nature.com\/articles\/s41746-024-01171-z#ref-CR2\" data-track=\"click\" data-track-action=\"reference anchor\" data-track-label=\"link\" data-test=\"citation-ref\" aria-label=\"Reference 2\">2<\/a>,<a id=\"ref-link-section-d79950802e596\" title=\"Curtis, E. Indigenous positioning in health research: the importance of kaupapa m\u0101ori theory-informed practice. AlterNative 12, 396-410 (2016).\" href=\"https:\/\/www.nature.com\/articles\/s41746-024-01171-z#ref-CR3\" data-track=\"click\" data-track-action=\"reference anchor\" data-track-label=\"link\" data-test=\"citation-ref\" aria-label=\"Reference 3\">3<\/a><\/sup>. Existing research overwhelmingly indicates that health outcomes are generally poorer in Indigenous communities<sup><a id=\"ref-link-section-d79950802e600\" title=\"Indian Health Services. Disparities. 2019. https:\/\/www.ihs.gov\/newsroom\/factsheets\/disparities (2023).\" href=\"https:\/\/www.nature.com\/articles\/s41746-024-01171-z#ref-CR4\" data-track=\"click\" data-track-action=\"reference anchor\" data-track-label=\"link\" data-test=\"citation-ref\" aria-label=\"Reference 4\">4<\/a><\/sup>. These inequities are heightened in pandemics, as COVID-19 has once again demonstrated, with some Indigenous communities experiencing significantly higher infection and death rates and lower vaccination rates<sup><a id=\"ref-link-section-d79950802e604\" title=\"Smylie J. et al. Uncovering SARS-COV-2 vaccine uptake and COVID-19 impacts among First Nations, Inuit and m\u00e9tis peoples living in Toronto and London, Ontario. CMAJ. 194, E1018-E1026 (2022).\" href=\"https:\/\/www.nature.com\/articles\/s41746-024-01171-z#ref-CR5\" data-track=\"click\" data-track-action=\"reference anchor\" data-track-label=\"link\" data-test=\"citation-ref\" aria-label=\"Reference 5\">5<\/a><\/sup>. Digital health has a role in improving access to services and delivering improved health outcomes for Indigenous communities.<\/p>\n<p>However, we argue that in order to be effective and ethical, it is essential that the field engages more with Indigenous peoples' rights and interests. We discuss challenges and possible improvements for data acquisition, management, analysis, and integration as they pertain to the health of Indigenous communities around the world.<\/p>\n<p>Read the full article here: <a href=\"https:\/\/rdcu.be\/dNXsz\">https:\/\/rdcu.be\/dNXsz<\/a><\/p>\n<p>Cordes, A., Bak, M., Lyndon, M. <i>et al.<\/i> Competing interests: digital health and indigenous data sovereignty. <i>npj Digit. Med.<\/i> <b>7<\/b>, 178 (2024).<\/p>\n<p><a href=\"https:\/\/doi.org\/10.1038\/s41746-024-01171-z\">https:\/\/doi.org\/10.1038\/s41746-024-01171-z<\/a><\/p>\n\n\t\t<\/div>\n\t<\/div>\n<\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row row bg_default\"><div class=\"wpb_column vc_column_container col-sm-12 col-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"vc_empty_space\"   style=\"height: 100px\"><span class=\"vc_empty_space_inner\"><\/span><\/div><\/div><\/div><\/div><\/div><div class=\"vc_row wpb_row row bg_default\"><div class=\"wpb_column vc_column_container col-sm-12 col-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"wpb-content-wrapper\"><div data-vc-full-width=\"true\" data-vc-full-width-temp=\"true\" data-vc-full-width-init=\"false\" data-vc-stretch-content=\"true\" class=\"vc_row wpb_row row vc_row-no-padding bg_default\"><div class=\"wpb_column vc_column_container col-sm-12 col-12\"><div class=\"vc_column-inner\"><div class=\"wpb_wrapper\"><div class=\"dhsv_vc_contact\">\n    <div class=\"container\">\n        <div class=\"row\">\n            <div class=\"col\">\n                <h2>\n                    Contact\n                <\/h2>\n            <\/div>\n        <\/div>\n        <div class=\"row\">\n            <div class=\"col\">\n                <p>\n                    The Institute of the History and Ethics in Medicine welcomes your contact.\n                <\/p>\n            <\/div>\n            <div class=\"col\">\n                T&nbsp;&nbsp;<a href=\"tel:498941404041\">+49 89 4140 4041<\/a><br \/>\n                M&nbsp;&nbsp;<a href=\"mailto:office.ethics@mh.tum.de\">office.ethics@mh.tum.de<\/a><br \/>\n                <br \/>\n                Mon-Thu: 9 a.m.-3 p.m., Fri: 9 a.m.-1 p.m. (core hours)\n            <\/div>\n            <div class=\"col\">\n                Ismaninger street 22<br \/>\n81675 Munich\n            <\/div>\n            <div class=\"col\">\n                <img decoding=\"async\" class=\"img-responsive\" src=\"https:\/\/get.med.tum.de\/wp-content\/uploads\/2021\/07\/Icon-TUM.png\">\n            <\/div>\n        <\/div>\n    <\/div>\n<\/div>\n<\/div><\/div><\/div><\/div><div class=\"vc_row-full-width vc_clearfix\"><\/div>\n<\/div>\n<\/div><\/div><\/div><\/div>\n<\/div>","protected":false},"excerpt":{"rendered":"<p>Digital health is increasingly promoting open health data. Although this open approach promises a number of benefits, it also leads to tensions with Indigenous data sovereignty movements led by Indigenous peoples around the world. The authors argue that in order to be effective and ethical, it is essential that the field engages more with Indigenous peoples' rights and interests. <\/p>","protected":false},"author":8,"featured_media":4146,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"_acf_changed":false,"footnotes":""},"categories":[29,30],"tags":[],"class_list":["post-4145","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-nachrichten","category-nachrichtenarchiv"],"thumbnail":{"id":4146,"url":"https:\/\/get.med.tum.de\/wp-content\/uploads\/2024\/07\/education-3648386_1280-300x199.jpg"},"acf":[],"yoast_head":"<!-- This site is optimized with the Yoast SEO plugin v27.4 - https:\/\/yoast.com\/product\/yoast-seo-wordpress\/ -->\n<title>Institut f\u00fcr Geschichte und Ethik der Medizin - Institut f\u00fcr Geschichte und Ethik der Medizin %<\/title>\n<meta name=\"description\" content=\"Digital health is increasingly promoting open health data. Although this open approach promises a number of benefits, it also leads to tensions with Indigenous data sovereignty movements led by Indigenous peoples around the world who are asserting control over the use of health data as a part of self-determination. Digital health has a role in improving access to services and delivering improved health outcomes for Indigenous communities. However, the authors argue that in order to be effective and ethical, it is essential that the field engages more with Indigenous peoples\u00b4 rights and interests. The article discusses challenges and possible improvements for data acquisition, management, analysis, and integration as they pertain to the health of Indigenous communities around the world. Read the full article here: https:\/\/rdcu.be\/dNXsz\" \/>\n<meta name=\"robots\" content=\"index, follow, max-snippet:-1, max-image-preview:large, max-video-preview:-1\" \/>\n<link rel=\"canonical\" href=\"https:\/\/get.med.tum.de\/en\/new-publication\/\" \/>\n<meta property=\"og:locale\" content=\"en_US\" \/>\n<meta property=\"og:type\" content=\"article\" \/>\n<meta property=\"og:title\" content=\"Institut f\u00fcr Geschichte und Ethik der Medizin - Institut f\u00fcr Geschichte und Ethik der Medizin %\" \/>\n<meta property=\"og:description\" content=\"Digital health is increasingly promoting open health data. Although this open approach promises a number of benefits, it also leads to tensions with Indigenous data sovereignty movements led by Indigenous peoples around the world who are asserting control over the use of health data as a part of self-determination. Digital health has a role in improving access to services and delivering improved health outcomes for Indigenous communities. However, the authors argue that in order to be effective and ethical, it is essential that the field engages more with Indigenous peoples\u00b4 rights and interests. The article discusses challenges and possible improvements for data acquisition, management, analysis, and integration as they pertain to the health of Indigenous communities around the world. 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Although this open approach promises a number of benefits, it also leads to tensions with Indigenous data sovereignty movements led by Indigenous peoples around the world who are asserting control over the use of health data as a part of self-determination. Digital health has a role in improving access to services and delivering improved health outcomes for Indigenous communities. However, the authors argue that in order to be effective and ethical, it is essential that the field engages more with Indigenous peoples' rights and interests. The article discusses challenges and possible improvements for data acquisition, management, analysis, and integration as they pertain to the health of Indigenous communities around the world. 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