ADJUST – Advancing health data justice: A comparative study of health-related data governance in Canada, Germany, and the United Kingdom

ADJUST develops and applies the idea of “health data justice,” which focuses on the needs of marginalized communities and how health data is collected, used, and accessed. Marginalized communities are those who have faced historical disadvantage and continue to experience many challenges accessing safe, high-quality health and social care. Recent advances in technologies that need large amounts of health-related data to be built, such as health-focused artificial intelligence, make it more urgent and important to ensure that uses of health-related data are in the best interests of marginalized communities. The project will explore policies, conduct interviews, and engage communities in three countries: Canada, the United Kingdom, and Germany. Comparing across these countries will make it possible to build new insights on health data justice.