Diversity and inclusion: A hidden additional benefit of Open Data
Marie-Laure Charpignon, Leo Anthony Celi, Marisa Cobanaj, Rene Eber, Amelia Fiske, Jack Gallifant, Chenyu Li, Gurucharan Lingamallu, Anton Petushkov, Robin Pierce
July 24, 2024
The recent imperative by the National Institutes of Health to share scientific data publicly underscores a significant shift in academic research. Effective as of January 2023, it emphasizes that transparency in data collection and dedicated efforts towards data sharing are prerequisites for translational research, from the lab to the bedside. Given the role of data access in mitigating potential bias in clinical models, the scientists hypothesize that researchers who leverage open-access datasets rather than privately-owned ones are more diverse. In this brief report, the authors proposed to test this hypothesis in the transdisciplinary and expanding field of artificial intelligence (AI) for critical care. Specifically, the study compared the diversity among authors of publications leveraging open datasets, such as the commonly used MIMIC and eICU databases, with that among authors of publications relying exclusively on private datasets, unavailable to other research investigators (e.g., electronic health records from ICU patients accessible only to Mayo Clinic analysts.
The study highlights the valuable contribution of the Open Data strategy to underrepresented groups, while also quantifying persisting gender gaps in academic and clinical research at the intersection of computer science and healthcare. In doing so, the researchers hope their work points to the importance of extending open data practices in deliberate and systematic ways.
Read the full article here: https://doi.org/10.1371/journal.pdig.0000486
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